Kessler Foundation is one four sites participating in “Quality of Life in Caregivers of Traumatic Brain Injury: The Development of the TBI-CareQOL”, a multi-site 5-year study funded by the National Institutes of Health/National Institute of Nursing Research (1R01NR013658-01). Nancy Chiaravalloti , PhD, co-investigator of the Kessler site, is also project director of the Northern New Jersey Traumatic Brain Injury System and director of TBI Research at Kessler Foundation.
The University of Michigan is the lead center for the study; Noelle Carlozzi, PhD, is principal investigator. The goal is to develop a measure of quality of life that is specific to caregivers of persons with traumatic brain injury (TBI). Although these caregivers have been identified as an underserved population in both civilian and in military life, there is a lack of measures of health-related quality of life (HRQOL) that are specific to these caregivers. “This study will result in a new tool that will help clinicians understand the issues these caregivers face,” said John DeLuca, PhD, VP for Research and Training, “and identify the need for additional treatment and resources both the patients with TBI and their families.”